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Born with a terminal illness called Duchenne Muscular Dystrophy, which is a relentless muscle wasting condition...
Boys with Duchenne are typically diagnosed before the age of five. Their muscles start to deteriorate all through life and have difficulty keeping up with others their age. Most Duchenne boys need a wheelchair between the ages of 10 and 12. The simplest of tasks, such as holding a pen or turning over in bed, becomes very difficult. In the later stages, heart and breathing muscles begin to fail. The average life span is 20 years old!
One in every 3,500 boys worldwide (an estimated 20,000 babies annually) is afflicted with Duchenne Muscular Dystrophy. The illness affects all ethnic and social groups. The gene mutation that causes Duchenne is usually passed from mother to son, but fully one-third of cases are spontaneous, which in Carl’s case – his is spontaneous with no history in the family!
Carl “Action” Tilson is regarded as a strong minded character that is so focused and determined to beat his condition by any means possible, since leaving college through illness Carl has become an active campaigner for the Charity Action Duchenne and he will most likely be celebrated as the destroyer of Duchenne Muscular Dystrophy with Team Action Duchenne & his supporters!
"I believe the times are changing now, where Duchenne Muscular Dystrophy is losing its grip, there is a tunnel where we are beginning to see light and soon we will be able to celebrate the end of this eternal suffering and have a near enough healthy life!"